I so sorry Estiveo
I had my mom and sister. My mom was frail, CHF & COPD, and my sister mentally retarded, (like a spoiled rotten 5 y/o that never grew up otherwise normal) had started having pretty bad seizures. Mom lasted for 3 years in and out of the hospital, while sister’s seizures were getting worse and apparently not controllable. The diapers came first, and after seizing, falling and breaking a foot or leg for the 3rd time I kept her in a wheelchair. But the dementia was getting worse, and so was the sleepwalking.
I put a baby monitor in her bedroom so I could hear her at night. But when she was sleepwalking or just wondering I couldn’t hear her. First I put a bell on her door, and that worked, but only if I was exactly where I could hear the monitor when she opened the door. After getting past me on that a couple times I took off the door knob and turned it around so I could lock her in at night just in case. It was the only safe thing to do.
After another year or two that was no loner necessary because she couldn’t walk at all anymore. In the end she was having about 40 seizures a day, and once she seized for 14 hours straight. I kept her home with me until she died after 11 years. She would never have lived that long in any facility and I too would do it all over again. She was very sick for a very long time, but she was the sweetest most loving thing that ever lived. (She could also be as stubborn as a mule!)
One thing I found out is that you learn quickly how to just keep one step ahead for safety sake. I even had a safety belt/ harness on the wall above the toilet so she wouldn’t flip off it while brushing her teeth. I swear even standing right beside her at all times you couldn’t stop her from falling, she’d flip head first in a split second. I would certainly start with a baby monitor. Knowing what she is doing and where she is at all times is really important. Once my sister got up and turned on the stove in the middle of the night. If you are dealing with dementia you never know what to expect.
When I was volunteering with the rescue squad we were called once to assist a State Trooper with a “confused” gentleman he had pulled over on interstate 95 south driving at 25 mph. He was very pleasant and kept saying he was just “going down to the store”. This happened halfway to Richmond and his home was in Philly. He’d been missing for 3 days and his family was frantic.
You just have to always be ready for anything.
Lots O’Hugs
